· There are two key elements of a preference-based instrument: (1) a classification system that provides a system for the full spectrum of health defined by a discrete number of health states and (2) a utility value set that provides a value for each health state as described by the classification system.7 Recently, a new health state classification system, the cerebral Cited by: 1. Abstract. This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. What Influences QOL in Dementia? Recent studies by independent investigators using a variety of measures have provided clinicians and researchers with a number of empirically derived factors that are associated with QOL in dementia from the perspectives of both the person with dementia and family caregivers. 4, 9 – 15 As these studies have accumulated, the factors that influence .
Quality of life (QoL) and health-related quality of life (HRQoL) among children and adolescents with CP is often assessed; however, research by Svien et al. and an updated literature search by the authors of this paper found no similar measurements for older adults with CP. To better manage CP symptoms and preventive care, and plan for social and work roles, adults need reliable information on age-related changes in both functioning and quality of life. Analysis of the CPCHILD scores showed improvements QoL for the patients with CP and their caregivers. In addition to improvement in the total CPCHILD score, there were improvements in the areas of personal care, positioning, and comfort. Overall, 92 percent of caregivers reported that their child's QoL was better one year after scoliosis surgery. Introduction. Cerebral palsy (CP) is defined as a qualitative motor disorder of movement and posture appearing before the age of 3 years, due to non-progressive damage of the brain, occurring before growth of the nervous system is complete. 1 The effect of the nonprogressive damage may however contribute to a misunderstanding of the secondary musculoskeletal pathology, which is not static but.
Validated CP-QOL child self-report and parent proxy version of questionnaire was used for data (GMFCS), Manual Ability Classification System (MACS). The CP QOL-Child and CP QOL-Teen are quality of life questionnaires for children and adolescents with cerebral palsy that can be used by researchers, clinicians. CP QOL – Child Manual. Appendix 2. CP QOL – Primary Caregiver Questionnaire. Appendix 3. CP.
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